Many of our publications are available for download below.
The survival of people-with-disability organisations - Why it is important to sustainably fund diverse peak advocacy organisations in Australia
A number of national people-with-disability organisations, involved in peak advocacy and representation, lost their core funding as a result of an Australian Government decision at the end of 2014. Despite budget agility and funding scraps, these organisations are at imminent risk of closing down. Given the importance of the consumer voice in the rollout of the National Disability Strategy and the NDIS we think it makes compelling good sense for Australia to provide sustainable funding to these organisations. If they are left to close down, that will be bad.
JFA Purple Orange has published a paper setting out the importance of such organisations and why sustainable funding is important. We hope you will be interested in downloading and reading it, and that you find a way to add your support. CLICK HERE for more information and to download the publication
Model of Citizenhood Support 2nd Edition 2013
The Model of Citizenhood Support 2nd Edition is available for purchase.
The Model of Citizenhood Support 2nd Edition was written by JFA Purple Orange CEO Robbi Williams and published by JFA Purple Orange. With the first edition published in 2010, the Model is a framework for advancing people into good valued lives. It is based on the premise that each of us wishes to live a good life, and that a good life is built upon, and maintained through, four key areas of capacity and growth. These key areas are termed the Four Capitals in the Model and comprise:
- Personal Capital
- Knowledge Capital
- Material Capital
- Social Capital
The Model is anchored on the concept of Citizenhood and how that might be advanced and upheld in the lives of people living with increased vulnerability, including:
- people living with disability
- older people
- people living with ongoing mental health issues
- homeless people
- anyone else whose circumstances mean they are at greater risk of being excluded from typical life chances.
Quantities of Life: Data from the Tellus Survey
(Williams and Fidock, 2012)
This report explores the findings of the Tellus Survey - a survey of almost 900 people living with disability, or who are close to someone living with disability. The findings reveal the continued presence of a range of lifestyle issues for people living with disability. They also highlight the importance of finding ways to build opportunities for people living with disability to have control and choice in their lives, and the opportunity to participate in community life and the economy as active citizens.
The Road to NDIS: Lessons from England about Assessment and Planning
(Duffy and Williams, 2012)
This paper explores the NDIS concept as a pathway of decisions, particularly relating to assessment and planning. It draws out learning from the introduction of individualised (self-directed) funding in England which gave rise to many stories of success and frustration, mainly due to the variation in its design across 150 local jurisdictions. It explores the English experience as a valuable source of information for the design of the NDIS in Australia by incorporating those elements that led to advancing people's life chances and avoiding less helpful elements. Overall, the commentary proposes ten lessons relevant to the design of the NDIS.
JFA Purple Orange Evaluation of Service Transformation to Consumer Directed Care Project (Fidock and Williams, 2012)
This report was undertaken on behalf of the Community Accommodation and Respite Agency (Cara) and ACH Group who received Home and Community Care (HACC) 'Innovative Ideas' Project Funding to test transformation from HACC-funded respite packages to individualised funding/consumer directed care funding packages.
Tellus® Survey report 1: Disability funding – where should it go? (Fidock and Williams, 2008)
This report details information collected from the disability community on the areas they felt government should be directing additional disability funding towards. It highlights the key areas identified by respondents, including discussion on how this relates to the allocation of resources by government for people living with disability.
Tellus® Survey report 2: Having choice and control (Fidock and Williams, 2009)
This report details concerns raised by people living with disability about choice and control in with respect to housing arrangements and support arrangements. It discusses these findings in the context of the UN Convention on the Rights of Persons with Disabilities, and notes the benefits of access to ordinary housing, person-centred planning, and the building of natural networks within the community.
Tellus® Survey report 3: Accessibility (Fidock and Williams, 2010)
This report aims to encourage consideration within the disability and wider community about the importance of people living with disability having equitable access within the community, with particular emphasis on people accessing public transport, public premises and primary healthcare services.
The experiences of people living with disability accessing primary healthcare: Challenges and considerations (Fidock and Williams, 2010)
General Practitioners (GPs) perform a crucial function in the provision of primary healthcare to people living with disability in our community, with reliance on this support continuing to grow. A survey exploring the experiences of people living with disability accessing their local GP service was distributed via South Australian disability community networks in May 2009. This report discusses the survey findings in terms of how GPs can enhance the quality of service they provide to people living with disability.
This document is a summary of the proceedings from the second Loop conference in South Australia, particularly in relation to the main question of the conference – Why is it so hard to speak up and be heard?
This document is a summary of the proceedings from the third Loop conference in South Australia, particularly in relation to the main theme of the conference – Getting a good life: Taking control of what’s possible.
Going to your local gym: Some ideas for people living with disability (Edwards and Williams, 2010)
The Julia Farr Association wrote this paper in response to issues raised by people living with disability about the challenges of accessing their local gym or health club. This briefing paper explores the benefits of going to a gym and provides ideas on how to make it easier for a person living with disability to access a gym or health club in their local community.
The article aims to inform key stakeholders – people living with disability, their families, service agencies, and federal and state policy-makers and funders – about the main characteristics and effects of Individualised Funding, so that there is an increased likelihood of Individualised Funding being made more widely available to Australians living with disability.
Individualised Funding: General considerations on implementation (Williams, 2008)
This paper is a companion piece to Individualised Funding – A summary review of its nature and impact and key elements for success (Williams, 2007).
The availability of Individualised Funding is essential to the empowerment of the disability community. Using an approach derived from the McKinsey 7S approach (Waterman et al, 1980), this paper sets out the key considerations underpinning the successful implementation of support arrangements where the person living with disability has control of the funding (here described as Individualised Funding). The analysis emphasizes a habit of collaboration among a range of stakeholders, and with particular reference to the genuinely heartfelt values that need to be present.
Resources available for people living with disability when seeking employment (Edwards and Williams, 2009)
This briefing paper outlines some of the resources available for people living with disability when seeking employment, in particular through an employment agency. It examines the availability and purpose of funding that can assist a person to gain ongoing employment. It explores Disability Employment Networks, Vocational Rehabilitation Services and Job Network Services, and attempts to answer common questions.
**note: this publication is not available for download due to changes in the policy framework since its publication
Family members causing harm to their loved ones living with disability (Julia Farr Association, 2009)
This briefing paper’s purpose is to help inform people about the issues that may be relevant to situations where family members harm, or consider causing harm, to a family member living with disability in order to raise awareness and help reduce such occurrences in the future.
This briefing paper was written in response to a need to explore the review of the 2009 Survey Disability, Ageing and Carers (SDAC) to be conducted by the Australian Bureau of Statistics (ABS) from August to December 2009. The ABS undertook consultation for the development of the 2009 SDAC from March-April 2008 to assist in gaining more information on priority areas for the survey.